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Camping and Fishing

Colorado Sickle Cell Data Collection Program

The Colorado Sickle Cell Data Collection (SCDC) Program uses data to study long-term trends in diagnosis, treatment, and healthcare access to improve the lives of people with sickle cell disease. 

The Colorado SCDC program is a partnership between the Center for Public Health Innovation, the Colorado Sickle Cell Treatment and Research Center, and the Colorado Sickle Cell Association. The program is funded by the Centers for Disease Control. 

Colorado SCDC combines data from newborn screening, electronic medical records, and all-payer claims data to better understand the prevalence of sickle cell disease (SCD) and to identify long-term trends in diagnosis, treatment, and healthcare access for people with SCD in Colorado. 

Mother and Son

Just as important as collecting data on sickle cell disease in Colorado is sharing that data with stakeholders to guide prevention and care efforts. Colorado and the other state SCDC programs, along with the national SCDC program, are continuously working on fact sheets, journal articles, and other dissemination materials to share with those living with sickle cell disease, family members and caregivers, health care providers, and policy makers. 

Man Carrying Child in Arms


State and national level SCDC programs have access to several sickle cell resources.

Colorado SCDC maintains a resource library which includes links to community-based organizations, the latest research on sickle cell disease, and other SCDC programs.  

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