Publications
Sickle Cell Disease Births and Social Vulnerability (2016-2020): A Report from the Sickle Cell Data Collection Program.
Mariam Kayle, Audrey Blewer, Wei Pan, Jennifer A Rothman, Carri Polick, Joshua Rivenbark, Elliott Fisher, John J Strouse, Shelby Weeks, Jay Desai, Angie Snyder, Mei Zhou, Ankit Sutaria, Sophia Horiuchi, Jhaqueline Valle, Marci K Sontag, Joshua I Miller, Ashima Singh, Mahua Dasgupta, Issac A Janson, Najibah Galadanci, Ayme Miles, Shamaree J Cromartie, Sarah L Reeves, Krista Latta, William O Cooper, Allison Plaxco, Matthew P Smeltzer; Sickle Cell Disease Births and Social Vulnerability (2016-2020): A Report from the Sickle Cell Data Collection Program. Blood 2023; 142 (Supplement 1): 3757. doi: https://doi.org/10.1182/blood-2023-190363.
Evaluating the discriminatory ability of the Sickle Cell Data Collection program’s administrative claims case definition in identifying adults with sickle cell disease: Validation study
Singh A, Sontag MK, Zhou M, Dasgupta M, Crume T, McLemore M, Galadanci N, Randall E, Steiner N, Brandow AM, Koch K, Field JJ, Hassell K, Snyder AB, Kanter J. Evaluating the discriminatory ability of the Sickle Cell Data Collection program’s administrative claims case definition in identifying adults with sickle cell disease: Validation study. JMIR Public Health Surveill. 2023 Jun 28;9:e42816. doi: 10.2196/42816.
Videos
The Colorado Sickle Cell Association Introduction Video
“They did not give me the same care…” | Stories of Sickle Cell: Tristan
“Kids with sickle cell disease can miss an incredible amount of school” | Stories of Sickle Cell: Dr. Lauren Smith
“I started doing pageants because of sickle cell” | Stories of Sickle Cell: Ayana
“I’m constantly learning myself.” | Stories of Sickle Cell: Constance
“We have a ton of studies that show bias” | Stories of Sickle Cell: Dr. Wally Smith
Informational Materials
Coming soon!