Newborn Screening Resources

Sickle Cell Data Collection Program Policy Brief: Newborn Screening Follow-Up in Georgia

Sickle cell disease clinicians, patient advocates, and family members in Georgia identified long-term newborn screening follow-up as a priority area for policy improvement, with the goal of fostering early referral to hematology care for infants diagnosed with sickle cell disease and increasing access to timely preventive care services.